Here are some frequently asked questions about NF2

What is NF2?
     NF2 is a genetic disease that is characterized by the growth of benign tumors
     along the nervous system.
What are the common signs of NF2?
     NF2 is most often diagnosed when a patient develops ringing or hearing loss in
     one or both ears.
Is there a cure?
    There is no known cure for NF2 at this time.  The disease is treated by the removal
    of the tumors as needed.
How is NF2 transmitted?
    Since NF2 is a genetic disease, it can only be transferred through genetic material...
    as in parents to their offspring.
What is the chance that my child will inherit NF2 if either myself
     or my spouse has NF2?
     Although it isn't entirely certain, the general consensus seems to be a 50% chance
What can I expect from life with NF2?
    Every case is different, so it is difficult to say for certain.  There are, however, some
    common problems that people with NF2 face.  NF2 is most often diagnosed by the
    presence of bilateral acoustic neuromas (benign tumors on both hearing nerves),
    spinal tumors, and inter cranial meningiomas (benign tumors within the cranium).
How are the tumors treated?
   The tumors are removed as necessary, through either surgery or some form of
    radiation.  Since treatment can often be detrimental, the tumors are usually not
    removed until they begin to pose a problem.
What is the probability of becoming deaf?
     Since most NF2 patients require the removal of bilateral acoustic neuromas, many
     experience some damage to the acoustic nerve during the surgery or radiation.  Since
     the acoustic nerve is so sensitive, this often results in deafness.  Not all acoustic
     neuroma patients become deaf, however, as some retain most or some of their
     hearing.

That's about all for now...if there are some questions I haven't addressed, feel free to e-mail me, or check out some of the sites from my links page.


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