As the person with MS, you will get to know more about your condition
than anybody else. You understand how individual symptoms affect you, both
mentally and physically, and you're best placed to monitor any changes in
your condition. Use your personal knowledge to avoid triggers that can make
your symptoms worse. Remember that getting the right information about MS
is vital and will mean that you'l;l be in a better position to make informed
decisions for yourself. the more you know, the more you can help the
professionals you deal with to help you.

Your local GP is your first point of contact. GPs aren't MS specialists
- many will only ever see one or two MS patients in their careers, so don't
expect them to understand the intricacies of the condition. Your GP can supply
repeat prescriptions for drugs and should be able to help you deal with some
of the symptoms, referring you on to more specialist help when you need it.
They can also liaise with your neurologist or MS nurse. A GP will hold all
your medical records, so will know about your entire medical history. It's
important to try and find an understanding GP who is open-minded and willing
to learn from your personal experience and knowledge of the
condition.

The neurologist is key in diagnosing, treating and prescribing
appropriate treatment for people with MS and they are now playing a more
active role in the longer-term management of MS, too. Your neurologist should
liaise with your GP and other specialists. Unfortunately, there is a shortage
of neurologists in the UK, so you might not get to see yours as often as
you wish.

A point of contact for people with MS and their families, MS nurses
tend to work closely with neurologists and have an in-depth knowledge of
the condition. If you have any questions about your symptoms or MS in general,
the MS nurse should be able to fill you in. Some run educational courses
for people who are newly diagnosed with MS and their partners. More MS nurses
are being appointed every year in the NHS and they can become the key to
co-ordinating the kind of care you need. Your GP or neurologist should be
able to tell you if there is an MS nurse in your area.
In MS, there needs to be a co-ordinated programme to tackle and
try to improve the range of MS symptoms, making the best use of specialists
in different fields or disciplines. The term 'multidisciplinary team' is
one you can use to describe the different specialists who have expertise
in certain areas that might be relevant to you. All ought to work as a team,
too, arriving at a programme that's tailored to you.
As well as your neurologist and MS nurse, your multidisciplinary
team could be made up of the following people who you might wish or need
to see at some point in the future:
Your GP and MS nurse should be able to refer you to any of the
above, or to other experts such as continence advisors, dieticians and
specialists in pain management.
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