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The Carcinoid
Cancer Foundation, Inc. The Carcinoid Cancer Foundation, Inc.
This non-profit organization is devoted exclusively to Carcinoid Cancer and is probably the best place to start. There is information here of value to both the patient and the doctor.
Susan
Anderson Carcinoid Cancer - Susan Anderson's pages
Susan is a long term Carcinoid fighter and is very proactive in the treatment of her disease. This must visit site contains a wealth of useful information plus her personal story and links to others.
Al Simms Carcinoid Cancer - Al Simms's Pages
In addition to detailing his personal battle, Al's pages contain an easy to understand laymans description of Carcinoid Cancer, it's treatment and prognosis. They describe the self injection of Sandostatin SubQ and contain important information about avoiding clumping problems when mixing and injecting Sandostatin LAR.
Larry Chinnery Carcinoid Cancer - Larry Chinnery's personal website
In addition to detailing his personal battle, Larry's pages contain a good deal of useful information for all Carcinoid Cancer patients
SCCF Southern California Carcinoid Fighters
The SCCF is a support group for people with Carcinoid Cancer. Their members come not only from Southern California but also the entire southwestern portion of the USA.
NCSG The National Carcinoid Support Group
http://members.aol.com/thencsg/
NSCG, Inc. A peer-to-peer support group for anyone with rare carcinoid cancer. Good info and various kinds of help available here.
GWCCS Greater Washington Coalition for Cancer Survivors
GWCCS is an all volunteer support group for cancer survivors, their families, friends and caregivers. It covers all types of Cancer.
Life With Cancer® Life With Cancer®
This organization is part of the Inova Health System and it's purpose is "To enhance the quality of life of those affected by cancer by providing education, information and support." There is a lot of general cancer information here.
American Cancer Society American Cancer Society
You've all heard of it and probably donated to it too. Much good info here. A search on Carcinoid will yield multiple articles.
CancerNet - NCI and NIH CancerNet - NCI and NIH
The Internet voice of the National Cancer Institute and the National Institute of Health. A search on Carcinoid will yield multiple articles.
CancerWEB CancerWEB
Use Search to find Carcinoid articles. A useful resource.
CARPA - Carcinoid Tumors CARPA - Carcinoid Tumors
Carcinoid Patient's Association - Sweden. Good info here - in English.
FDA Sandostatin Approval
A bit of history - The original approval of Sandostatin for human use....something very important to many Carcinoid patients.
Food and Drug
Administration Food and Drug Administration Home Page
A USA watchdog and research organization that is important to all of us.
Novartis -
Manufacturer of Sandostatin Novartis - Manufacturer of Sandostatin
The company that makes our lifeline.
Oncology Channel - Carcinoid Malignancy Oncology Channel - Carcinoid Malignancy
More Carcinoid Cancer information.
Tirgan
Oncology - Carcinoid Tumor Tirgan Oncology - Carcinoid Tumor
A brief and easy to read article about Carcinoid Cancer. Also Links.
Uppsala Univ.
Department of Medical Sciences Uppsala Univ. Department of Medical Sciences
A Swedish university doing research on Carcinoid Cancer.

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