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DOWNLOADS Click on one of the following to download a printable CACS brochure that describes and locates our group.  Display Only: page 1.  Display Only: page 2. CACS Brochure (PDF) - 334K - You must have Adobe PDF Reader 5.05 or newer installed on your computer to open this document. It is available free at the Adobe website. CACS Brochure (MS Publisher) - 196K - You must have an unzipping program and Microsoft Publisher installed on your computer to open this document. CACS Brochure (MS Word 97) - 217K - You must have an unzipping program and Microsoft Word 2000 or newer installed on your computer to open this document. Carcinoid Cancer Foundation Brochure (PDF) - 3.6mb - You must have Adobe PDF Reader installed on your computer to open this document. It is available free at the Adobe website. The single most important resource that all Carcinoid patients have is The Carcinoid Cancer Foundation. Click on the following to download God Bless the USA - 8K -, the midi file which is now playing. |
A Patient-run support group formed in September 2001 for patients and caregivers in DC, MD, VA and the eastern USA who are dealing with Carcinoid Cancer and Carcinoid Syndrome. |
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| We invite you to attend the next meeting of the Capital Area Carcinoid Survivors CACS. CACS meetings are held on one Saturday each month from approximately 10:00 AM until 12:30 PM at the LifeWith Cancer Family Center ® which is located near Inova Fairfax Hospital. Directions will be found on the When and Where page of this website. Other upcoming events include a number of interesting speakers as well as time always reserved to discuss and help each other with our own concerns. More detail on future events will be found on our Meetings Page If you plan to attend, please contact the Director on Duty, Al Simms and let us know that you are coming so that we can arrange for properly sized facilities. The director on duty for the month will respond to your Email on this or any other subject. You may also contact a specific director by clicking their personal Email address on the About Us page. CACS chose October 2004 as Carcinoid Awareness Month, inviting the governors of Maryland, Virginia, and West Virginia and the mayor of Washington, DC to issue proclamations. Work is under way to have the governors of other states---and the President as well---also announce Carcinoid Awareness Months. This is important in making the public aware of this rare disease and perhaps in acquiring funding for research that will benefit Carcinoid patients worldwide. Click here to go to a page where you can view the Proclamations of CACS "local" states. We continue to grow and have excellent attendance at our meetings. We have had a variety of speakers including Dr. Richard Warner of the The Carcinoid Cancer Foundation, Inc., Dr. Karel Pacak, Cheif of Clinical Neuroendocrinology at NIH, Dr. Kjell Oberg of Upsalla University in SWeden, Dr Ahlgren of GW university in Washington, DC, Monica Warner of the The Carcinoid Cancer Foundation, Inc., Dr. Stephen Marx, MD who was the discoverer of the MEN-1 gene, Dr. Jeff Geschwind from John's Hopkins who gave us an excellent talk about Chemoembolization and other Carcinoid related issues, Dr. Andrew Kennedy of the U. of Md. who spoke to us about the new TheraSphere treatment for Carcinoid patients and a senior official from the FDA who talked about orphan diseases such as ours. In mid-summer we have a picnic at a member's home and then in December a holiday social event (we do have lives other than Carcinoid!). We also make certain that some meetings are devoted to sharing our own ideas and stories. At each meeting folks go away with new ideas to deal with problems and discomforts that they and loved ones are having. This group is not only for Carcinoid survivors themselves but also for "partners" or other caregivers. At each meeting they too have a chance to share the problems that they face. This is not a group of "whiners!" We have varying degrees of the illness and one of our members is a 30 year survivor. We have a number of highly skilled people on board including a former 15 year long president of the American Cancer Society, a lawyer and a CPA or two. We are in contact with Novartis, the maker of Sandostatin, as well as other health organizations and we are pressing them for more research on this disease. If you share our concerns, please do join us in these efforts. |
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