Notes from our thread on Tardive Dyskinesia

http://www.ninds.nih.gov/health_and_medical/disorders/tardive_doc.htm

I have been doing a lot of research on Meds - they have always scared
me. It might be because I see the worst in my job. People who now have
permanent tardive dyskinesia from the medications. Glad to hear that
Nora is getting checked out. We are hearing about movement disorders -
one young woman started with a shuffle and now can't get off the couch
or eat or anything. Is it the high level of meds that caused it?
Nobody seems to know.

OK....hate to be behind here...can you tell me what this is and how it
happens?
Renee

http://www.ninds.nih.gov/health_and_medical/disorders/tardive_doc.htm

Yeah, I first heard about it reading through de-institutionalization
literature. At that time everyone was really upset about people being
"chemically restrained" with Haladol. However, now I am hearing about
it a lot more about younger kids. Kids who have been managed with meds
for a long time with "cocktails" then they end up with movement
disorders as young adults. I was reviewing the list of people with
medications that have to go through the Human Rights Committee at the
CCBs - it is a lot of people - it is a lot of medications! And that is
only the people on Comp Services - SLS doesn't have to go through HRC.
There may be a hidden problem here - of course there may not be a
problem - just something I keep wondering about. (another one of those
ever present issues that I can't seem to get resolved!)

There are also other classes of drugs, like regelan (a GI motility drug)
that also cause TD.

Denver,
Thank you very much. I had not heard about this before in spite of the fact
that we have over 100 families in our XXYY group and many of them are using
these drugs.